15 Things Not to Say to Someone With Myasthenia Gravis
February is Rare Disease Awareness Month, and something that is very close to my heart. In fact, it is the reason I started blogging and sharing on social media. You see, in 2004, I was diagnosed with a rare and potentially life-limiting condition called Myasthenia Gravis. Myasthenia gravis (my-us-THEE-nee-uh GRAY-vis) causes muscles under your voluntary […]
Rare Disease Day 2022
Shining the Light on Rare Diseases in South Africa This year for World Rare Disease Day (WRDD) on the 28 February 2022, Rare Diseases South Africa (RDSA) is redefining what it means to be “RARE”. Because we all are! Can you touch your chin with your tongue, do a cartwheel or solve maths problems […]
